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Research involvement opportunities
We are often forwarded research and other consultation projects who are looking for trans & non-binary individuals to be involved.
We list them here - if you'd like to be involved, please click the links or contact the people listed directly - we don't always have additional information about everything we post here!
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The effects of gender-affirming hormone treatment in trans women on morphological, functional and molecular markers of performance relevant to combat and collision sports: A Manchester Metropolitan University project
This study aims to identify the effects of Gender Affirming Hormone Treatment (GAHT) on people who are transgender and how this may change over time with treatment. We will be able to compare the effects of this treatment to people who are the same gender that they were assigned at birth (both male and female). This study will help to understand if there are any fairness or safety concerns for their inclusion in sport.
This study has been funded by the International Olympic Committee and will last for 7 years (including 1-2 years of direct involvement for you, with the rest of the time devoted to testing other participants and conducting lab analyses).
If you are aged 18-39 & identify as transfeminine and are due to start feminising hormone treatment in the next 3 months, then you are likely eligible for this study. Please contact Dr. Blair Hamilton via email B.HAMILTON@MMU.AC.UK if you would like to participate or find more information.
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NHS England data linkage study – understanding the needs and healthcare experience of former Tavistock GIDS (Gender Identity Development Service) patients
This study was initially conceived during the Cass Review but has since transferred to NHS England to deliver.
It aims to fill some key gaps in our knowledge about the needs of children and young people who were referred to the Gender Identity Development Service (GIDS) and what sort of care and support they have received.
Former GIDS patients will not need to provide any new information for the study. Instead the study makes use of healthcare data already collected by NHS gender services and from other national healthcare datasets and will ultimately help us learn from the experiences of former GIDS patients in order to improve the care that the NHS can deliver in the future. As we head into the delivery phase of the study, we would like to engage with former GIDS patients, to help us to ensure that information about the study is easily available and reflects the kinds of questions former GIDS patients may ask, to co-design patient materials including the study-specific data opt out, and to help us ensure that the study findings are clearly communicated.
If you were referred to the GIDS service between 2009 and 2024, are now over 18, and interested in helping us to take this research forward, please get in touch with us at england.scengagement@nhs.net for an initial conversation.
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EN RAPPORT - Establishing normative ranges for cardiopulmonary function and physiology for transgender people: a pilot, feasibility study
Recent reports suggest that at least 0.5% of the population in England and Wales are transgender; as with cisgender people, transgender people may require cardiovascular care. However, to date, there are no published references ranges for cardiopulmonary function in transgender people, and no data on how gender affirming hormone treatment affects cardiopulmonary function. This information is vital for the care of transgender people as they age. Despite the increasing numbers of people identifying as transgender, medical studies involving this population are scarce, reflecting the complexities of recruiting transgender people into clinical trials.
The aim of this study is to establish cardiopulmonary reference ranges for transgender people on cross-gender hormone treatment. The study (arm 1) will test the feasibility of recruiting transgender subjects aged ≥ 18 years who have undergone cross-gender hormone treatment for ≥ 2years. Study assessments will include magnetic resonance imaging to measure cardiac volumetry/function and cardiopulmonary exercise testing. We will also evaluate research participation among transgender people and identify potential barriers to their participation. The data from this pilot study will provide appropriate data to power a larger, definitive study subject to further external grant funding.
In a separate study arm (arm 2), an anonymous survey will be conducted via Twitter to explore potential barriers to research participation.